Thursday, June 9, 2011

I'm A Terrible Blogger

I've been really bad at blogging lately. Part of this is due to the fact that I am just so busy during the days now. I don't seem to get too many breaks like I used to during the day, mostly because the older non-napping children will no longer be good and go watch a movie at naptime and LEAVE ME ALONE for an hour's peace. Oh no. They are "bored" with that. They don't waaaaannnnt to (said with an extended whine). So I feel that I must perform my professional duties and find things for them to do. Either that or appear too busy (which actually means being busy) to entertain them. Sigh. And because of the better weather, we've been outside a lot too, so I'm not near a computer. And then evening hits, and all I feel like doing is collapsing, and my brain is too tired to function.
So the other reason is that I am long-winded, as you know form my posts. None of them are particularly short. So I'll start writing a post, then get interrupted halfway through, and by the time I have a chance to get back to it, my muse is gone and I don't feel like writing that subject anymore. I just don't have enough time!
But sorry.
I'm sure all you nice people that read me (all what, 5 of you? LOL!) have been wondering what is going on with M, my niece. So here is an update.
My sis and BIL got the results of M's biopsy, and the news wasn't good. So here's what I've pieced together from various sources (N, my dad, and google). The main tumor is on her brain stem, which we already knew. It is inoperable, which we knew. It is definitely cancer. Ther are a couple of other smaller tumors in her brain. The outlook isn't good. My dad told me that they were told "a year to live". I didn't ask my sis N if that was true, because really, I couldn't ask her to rehash that, and also we are choosing to believe that miracles do happen and what is the point of listening to doctors' timelines? It's not as if you're going to cross off the days on a calendar.
I know from googling, that the prognosis for brain tumors of this type isn't good. The percentages of survival are extremely low. But here's my thought: Some people had to make up those statistics. That means some people had to have survived it. Otherwise, the percentage would be zero, wouldn't it? So why can't M be one of those in the percentage of survival? Hope is the only thing that keeps us going.
So on the medical side, she is having six weeks of radiation treatment, everyday, except weekends. That is to hopefully shrink the tumors and extend her life (I believe anyway). Chemo is not an option, as it doesn't work on the brain. This is both good and bad news. Good because it would be terrible to have to watch your child go through that, the medication is so toxic. Bad because it eliminates a treatment option and another pathway to a hopeful recovery.
On the non-medical side, my sis and BIL have contacted the homeopath I probably mentioned earlier. He is world-renowned in the homeopathic community, and has had great success with treating cancers and other terminal illnesses. He wrote a book that N read and told me that in it he claims to have a 70% success rate with curing the type of cancer that M has! And that was ten years ago. So hopefully the rate is better now, that he will have learned more since then. And he works in conjunction with modern medicine, so they don't have to choose one or the other. We are very hopeful that this will have a positive effect. I can't fathom the other option. It's just...too....wrong.
M is doing well. She hasn't had too many ill effects from the radiation yet, and you wouldn't know that she was a gravely ill little girl. This weekend M, N and I are going to see Glee in Concert! I am so excited to see it, and also to watch M enjoy it. She loves the music!


  1. I'm not an overly religious person (I don't go to church) but I do believe. I will continue to hope and pray for M. That her will staysstrong, that the radiation shrinks those tumours to oblivion, and that the homeopath help does indeed help.

    It's not right, for any little one, to have something like this happen.

    Your friend,


  2. I too will keep M and your family in my thoughts. You are absolutely right that miracles do happen, and I will keep wishing, praying and hoping for one for you guys.

    As always, anything we can do to help even in a tiny way, please let me know!

  3. I was just thinking of you and your neice yesterday and wondering how things were. I'm sorry to hear that things don't look good. I hope the radiation shrinks those tumors to nothing and that she is on right side of the survival stat!

  4. Have a great time, rockin' to Glee.