I've been really bad at blogging lately. Part of this is due to the fact that I am just so busy during the days now. I don't seem to get too many breaks like I used to during the day, mostly because the older non-napping children will no longer be good and go watch a movie at naptime and LEAVE ME ALONE for an hour's peace. Oh no. They are "bored" with that. They don't waaaaannnnt to (said with an extended whine). So I feel that I must perform my professional duties and find things for them to do. Either that or appear too busy (which actually means being busy) to entertain them. Sigh. And because of the better weather, we've been outside a lot too, so I'm not near a computer. And then evening hits, and all I feel like doing is collapsing, and my brain is too tired to function.
So the other reason is that I am long-winded, as you know form my posts. None of them are particularly short. So I'll start writing a post, then get interrupted halfway through, and by the time I have a chance to get back to it, my muse is gone and I don't feel like writing that subject anymore. I just don't have enough time!
But sorry.
I'm sure all you nice people that read me (all what, 5 of you? LOL!) have been wondering what is going on with M, my niece. So here is an update.
My sis and BIL got the results of M's biopsy, and the news wasn't good. So here's what I've pieced together from various sources (N, my dad, and google). The main tumor is on her brain stem, which we already knew. It is inoperable, which we knew. It is definitely cancer. Ther are a couple of other smaller tumors in her brain. The outlook isn't good. My dad told me that they were told "a year to live". I didn't ask my sis N if that was true, because really, I couldn't ask her to rehash that, and also we are choosing to believe that miracles do happen and what is the point of listening to doctors' timelines? It's not as if you're going to cross off the days on a calendar.
I know from googling, that the prognosis for brain tumors of this type isn't good. The percentages of survival are extremely low. But here's my thought: Some people had to make up those statistics. That means some people had to have survived it. Otherwise, the percentage would be zero, wouldn't it? So why can't M be one of those in the percentage of survival? Hope is the only thing that keeps us going.
So on the medical side, she is having six weeks of radiation treatment, everyday, except weekends. That is to hopefully shrink the tumors and extend her life (I believe anyway). Chemo is not an option, as it doesn't work on the brain. This is both good and bad news. Good because it would be terrible to have to watch your child go through that, the medication is so toxic. Bad because it eliminates a treatment option and another pathway to a hopeful recovery.
On the non-medical side, my sis and BIL have contacted the homeopath I probably mentioned earlier. He is world-renowned in the homeopathic community, and has had great success with treating cancers and other terminal illnesses. He wrote a book that N read and told me that in it he claims to have a 70% success rate with curing the type of cancer that M has! And that was ten years ago. So hopefully the rate is better now, that he will have learned more since then. And he works in conjunction with modern medicine, so they don't have to choose one or the other. We are very hopeful that this will have a positive effect. I can't fathom the other option. It's just...too....wrong.
M is doing well. She hasn't had too many ill effects from the radiation yet, and you wouldn't know that she was a gravely ill little girl. This weekend M, N and I are going to see Glee in Concert! I am so excited to see it, and also to watch M enjoy it. She loves the music!
Showing posts with label update. Show all posts
Showing posts with label update. Show all posts
Thursday, June 9, 2011
Tuesday, March 1, 2011
Disney Update
Yesterday I posted about Disney, and I had a friend read my post and comment about it on Facebook.
She said,"Is there any way to find out what hotel she was thinking of staying in? You could look it up and see what star it is, and if it is an all-inclusive or not. You shouldn't be afraid to ask her for more details, especially if she just said "I want to take you all to Disney with me!" You have a right, without being rude, to ask if she had any plans other than just going!"
I started to write her back, but then thought I should just post you all an update about what I was going to tell her.
Actually, the Nan is having us do all the research, but she has the final say of course. DH is looking up suites, but I don't think there is anything "all-inclusive", a la Carribean resort style. We have seen some hotels with breakfast included, but that's about it. He did ask her about meals, and it sounds like she's paying, so that's a relief. I did express all my thoughts to DH, and he agreed and said he would try to watch himself, both with her and the boys. It set my mind at ease a bit. He also asked her about the part regarding her fatigue, if she wanted to go back to the hotel early and whatnot. She simply said she would bring a book, and to "leave her on a bench and come back for her in an hour". As accommodating as that seems, I don't see that as being very realistic. I just hope we can find a hotel not too far away from the parks, as it looks as though we will be renting a car unless we're right in a Disney resort, and that way if she really wants to go, she can catch a cab or something.
DH did say that the Nan remarked that she wouldn't be waiting for anyone for breakfast, meaning, we would need to get our butts in gear quickly. Now, I don't intend to waste my days sleeping in, but I also don't want someone standing over me huffing and puffing and harping at me that they're hungry. And I know that she is OCD about her breakfast. I've seen that much from being at the cottage with her. As soon as she leaves her bed she comes out to the kitchen, and regardless of who is already in there, or if someone is cooking something, or still sleeping, or whatever, she will basically push them out of the way to get her breakfast.
See, ornery.
Anyhow, DH and I thought it would be best then to either find a hotel that does free breakfast, or has suites, with a separate bedroom and kitchenette. That way, we can have breakfast in the hotel suite and eat when we please.
I just hope that we can get all this booked. It's all well and good to have us research and decide stuff, but until we find out for sure tomorrow afternoon sometime that DH is going to be good to go for entering the States, we can only look but not touch. And stuff is filling up. One of the resorts that looks best suited has like, three rooms left or something, and the flights are getting lean too. We can't be separated on flights. Well, not too much. We can do two, two and one, but I can't leave my children alone to fend for themselves on the other side of the plane! They are definitely not seasoned travelers!
She said,"Is there any way to find out what hotel she was thinking of staying in? You could look it up and see what star it is, and if it is an all-inclusive or not. You shouldn't be afraid to ask her for more details, especially if she just said "I want to take you all to Disney with me!" You have a right, without being rude, to ask if she had any plans other than just going!"
I started to write her back, but then thought I should just post you all an update about what I was going to tell her.
Actually, the Nan is having us do all the research, but she has the final say of course. DH is looking up suites, but I don't think there is anything "all-inclusive", a la Carribean resort style. We have seen some hotels with breakfast included, but that's about it. He did ask her about meals, and it sounds like she's paying, so that's a relief. I did express all my thoughts to DH, and he agreed and said he would try to watch himself, both with her and the boys. It set my mind at ease a bit. He also asked her about the part regarding her fatigue, if she wanted to go back to the hotel early and whatnot. She simply said she would bring a book, and to "leave her on a bench and come back for her in an hour". As accommodating as that seems, I don't see that as being very realistic. I just hope we can find a hotel not too far away from the parks, as it looks as though we will be renting a car unless we're right in a Disney resort, and that way if she really wants to go, she can catch a cab or something.
DH did say that the Nan remarked that she wouldn't be waiting for anyone for breakfast, meaning, we would need to get our butts in gear quickly. Now, I don't intend to waste my days sleeping in, but I also don't want someone standing over me huffing and puffing and harping at me that they're hungry. And I know that she is OCD about her breakfast. I've seen that much from being at the cottage with her. As soon as she leaves her bed she comes out to the kitchen, and regardless of who is already in there, or if someone is cooking something, or still sleeping, or whatever, she will basically push them out of the way to get her breakfast.
See, ornery.
Anyhow, DH and I thought it would be best then to either find a hotel that does free breakfast, or has suites, with a separate bedroom and kitchenette. That way, we can have breakfast in the hotel suite and eat when we please.
I just hope that we can get all this booked. It's all well and good to have us research and decide stuff, but until we find out for sure tomorrow afternoon sometime that DH is going to be good to go for entering the States, we can only look but not touch. And stuff is filling up. One of the resorts that looks best suited has like, three rooms left or something, and the flights are getting lean too. We can't be separated on flights. Well, not too much. We can do two, two and one, but I can't leave my children alone to fend for themselves on the other side of the plane! They are definitely not seasoned travelers!
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