I have some updates, and some recommendations here. First, I'll do the recommendations...
**CAUTION** If you don't like anything remotely smutty or have a huge aversion to erotica, then don't bother reading this. Recently, I purchased for my Kobo app and read the Fifty Shades Of Grey Trilogy, by E.L. James. I've actually read it before, back when it was under a different name and was classified as Twilight Fan Fiction. But it was such a good story, that I wanted to read it again, and it didn't disappoint. The books are centred around a love story between a very unlikely couple. She's a student, he's rich and powerful. She's loving and kind, he's damaged, but oh, so sweet and sexy. I don't want to give away too much of the story, but it's a great read, and I'll likely read it again soon! The author obviously had to make some changes, since it was originally a piece of fan fiction, but the characters and story are all hers. Be warned though, you can not read just the first book. Actually, I don't even think there is a true end to it. It just leaves you hanging. You could read just the first two books on their own, but then, they're good, so why wouldn't you want more?
Now, an update on L. We had an appointment with the pediatrician, (DH took him) and the pediatrician really didn't think there was much to worry about. *WHEW* He said a lot of it comes from school, and from being one of the youngest in the class. Plus, let's face it, school hasn't been too good to him. He's had a lot of incompetent teachers. So I spent some time blaming myself, even though I knew I shouldn't, but I couldn't help it. It was more of a "Why didn't I listen to my instincts?" type of thing. I was lamenting the fact that I really should not have started him in school when I did. I should have waited until he was at least four. It all spiraled from there. Well, what's done is done. I can't change the past.
Now, we are waiting for an appointment with a counsellor. Even though the Dr. thought he was ok, he still referred us to a counselling service, so that's good. I've answered so many questions to these counsellors already, I'm starting to second-guess myself. Plus, he's been so much better lately. Not as moody, although there are of course, plenty of outbursts. I attribute most of his problem to DH. When he's around more, L is happier. Simple fact. But he can't be around more, that's all there is to it, it's life. He will have to graduate school and go back to working full time. So, I don't know if his moodiness will get worse again then. Plus, when DH goes back to work this time, it will coincide with the beginning of a new school year, another tough time for L. It won't be a good combo.
Lastly, an update on me. Back in the beginning of Feb, I had laproscopic surgery.Yesterday, I had my follow up appointment. Since I received my diagnosis of stage four endometriosis, I've been doing some reading, helped along by my good friend Lisa who sent me some info on the disease itself plus info on new medication that is available. I felt much more prepared going in to this appointment having some background information and questions prepared. Plus, DH came with me and had questions too. I can't imagine how I would have felt not knowing I even had this before my appointment. Again, I have to wonder, why wouldn't the doctor have come to see me after my surgery? Why did I have to make what was made to seem as an unorthodox phone call, to see what happened? Anyway, that was one question I forgot to ask. It doesn't change anything anyway.
Basically, I need a hysterectomy. There is no way around it. It's only a matter of when. Right now, I can keep going along as I am. I haven't had an "attack" for several months, so here's hoping it stays that way. The new medication is supposed to prevent any further growth of the endo. Eventually, if I never have the surgery, the endo could compromise my bowel. I don't want that.
So I have two choices. #1. I can wait for an indefinite amount of time to see a specialist in Hamilton. My OBGYN here recommended him, saying he's the best of the best around, and he specializes in removing endo and performing hysterectomies by laproscopic surgery. My OBGYN said himself that he wasn't good enough to perform the hysterectomy by laproscopy (not sure if that's the word or not). He is too worried about the attachment to my bowel, and that is a very touchy area. The slightest wrong move, and he could nick the bowel. Then I'd have a whole host of other problems! So the pros to this is that A) I don't have to have invasive surgery, therefore less dangerous B) the recovery would be faster. The cons are that A) it's in Hamilton (at least 2 hour drive from here) B) I don't know this doctor yet (what if he's an arrogant asshole?) C) I may have to wait a long time for an appointment and surgery D) the OBGYN said I don't need to stay in hospital, they send you home (WHAT?! Not what I would want at all, I'd like at least one night in hospital so I know everything is ok). That all being said, I'd say the pros still outweigh the cons.
My #2 choice is to stay here with my own OBGYN, have the surgery whenever, and it's a three or so day stay in hospital with a *GULP* 6 to 8 week recovery time. That's for most people to go back to work. I'm sure that people who work for themselves and/or have young children go back to work far sooner than that. The surgery is far more invasive, involving cutting me open, and manhandling of all my innards, including the bowel. My mom, who is an OR nurse, says that even if they don't cut the bowel, just handling it can cause it to shut down, or stick together inside or other really "fun" stuff. The only real pros I see to this scenario are A) it's faster (being resolved), B) I know the doctor and he's very kind and considerate, C) I would get to stay in my own hospital and have friends visit me, D) I wouldn't have a long, uncomfortable drive home after surgery, just a short one.
For now, I'm waiting to see how long I'll have to wait for an appt with Dr. Fantastic. I keep taking my new pill, and in three months I have an appt to go back to my own OBGYN and let him know how I'm progressing with that. Hopefully if I am doing well on this pill, he'll give me more for free.
Showing posts with label Surgery. Show all posts
Showing posts with label Surgery. Show all posts
Monday, April 2, 2012
Thursday, February 9, 2012
So Now What?
On Tuesday, I went in for my laparoscopic surgery to remove my dermoid cyst, look for endometriosis, and tubal ligation. The surgery itself went fine, I guess. I mean, I'm still alive, no lasting damage done.
The day was very long. I had to be at the hospital for 11:00 a.m., which meant no food after midnight, and no liquids after 8:00 a.m. (and only clear ones before that.) it was a long time to wait to be without fluids. That really sucked. I was so thirsty. I have no problem going without food, not that I could have eaten with my nerves anyway, but I hate being unable to drink. My head was pounding by the time surgery came around 2 in the afternoon!
My mom came with me, and I felt bad for her. It was a lot of waiting around for her. At least I was unconscious for part of it.
So this was my first experience with anesthetic and surgery. I was very worried about the coming around part, but it wasn't that bad. They didn't rush me, or tell me to stay awake, so that was good. They did, however shove pills into my mouth when I was half conscious. I thought that was weird. I think I was coming to, and losing consciousness a fair bit, although it didn't see like it at the time. I remember coming to, coughing, and then feeling like I didn't want to open my eyes, so I didn't. In my half-lucid state, I was thinking rather childishly that if I pretended to be asleep, they'd leave me alone. HA HA! The next thing I remember is someone calling my name and shoving a straw between my lips, then telling me to open and shoving pills in my mouth! Lucky for them I take pills easily, unlike some people I know that can't take pills at all.
The next thing I remember is them moving me to the next recovery room. I did manage to look at a clock and was shocked to see it was around four. I was in a fair amount of pain, like really bad cramps. They were asking me how bad the pain was, on a scale of one to ten, ten being the worst pain I ever felt. Well, I've felt some really bad pain in my life. I've had two children without any drugs, so I know pain! But telling them that this pain compared to that was merely a three wasn't going to get me any more pain meds. I'm learning that the hard way. Thankfully they took pity on me when they couldn't take watching me lie there grimacing and writhing anymore. They shot me up with something, and then I was better.
But I was so sleepy. My mom came into the room,we talked for a bit, then I went to sleep on her. So she just played solitaire on my ipad When I woke up, I felt a bit nauseous, so even though the nurse was hoping to get rid of me, she shot me up with gravol, which meant that I had to stay another half hour. I was ok with that. I promptly passed out again.
The next time I woke, I realized the whole place was pretty much vacant. But I still felt sick. Mom helped me dress, then got my drunken self into a wheelchair and wheeled me out. That was the worst ride I've ever had. By the time mom got to the doors, I was opening the barf bag and holding it up to my face. When she went to get the car, I asked her to leave me outside, despite the negative temperatures. Actually, that's the only thing that helped; the cold, cold fresh air.
When I got home, I went to the bathroom and looked at myself in the mirror. I was shocked by how grey I looked. Horrible.
I basically slept on and off since two o'clock that day until seven the next morning. That's a lot of sleep, even if some of it was drug-induced!
Since then, I've been ok. The incisions aren't too sore, it's more the air that's stuck inside of me that's killing me. They pump air into you so they can see what they're doing, but don't remove it. So it's stuck in my abdominal cavity, bubbling around and driving me crazy. It's painful, as gas can be. Only I can't burp or fart it out (forgive the crudeness!), I can just hope for it to somehow dissipate.
The weird part of this experience is that the doc never came to talk to me afterwards. I had to call his office the next day to find out what happened. I also had to make a follow up appt for six weeks away.
So as it turned out, I never actually had a dermoid cyst. What I do have, is stage four endometriosis, which is severe, and a lot of scarring on my uterus and ovary. Apparently, my ovary is stuck to my bowel, so he couldn't remove it without fear of putting a hole in my bowel.
So basically, he said my option is to have a hysterectomy. Which I guess doesn't really make it an option. Unless I choose to not have one, but then what? I'll continue to have these painful episodes. And likely they'll get worse. But even a hysterectomy doesn't guarantee the endometriosis will go away.
So that's my story. I don't know what to do,but I'm guessing the next time the endo flares up, I'll be making a solid vow then to end the pain by any means possible.
The day was very long. I had to be at the hospital for 11:00 a.m., which meant no food after midnight, and no liquids after 8:00 a.m. (and only clear ones before that.) it was a long time to wait to be without fluids. That really sucked. I was so thirsty. I have no problem going without food, not that I could have eaten with my nerves anyway, but I hate being unable to drink. My head was pounding by the time surgery came around 2 in the afternoon!
My mom came with me, and I felt bad for her. It was a lot of waiting around for her. At least I was unconscious for part of it.
So this was my first experience with anesthetic and surgery. I was very worried about the coming around part, but it wasn't that bad. They didn't rush me, or tell me to stay awake, so that was good. They did, however shove pills into my mouth when I was half conscious. I thought that was weird. I think I was coming to, and losing consciousness a fair bit, although it didn't see like it at the time. I remember coming to, coughing, and then feeling like I didn't want to open my eyes, so I didn't. In my half-lucid state, I was thinking rather childishly that if I pretended to be asleep, they'd leave me alone. HA HA! The next thing I remember is someone calling my name and shoving a straw between my lips, then telling me to open and shoving pills in my mouth! Lucky for them I take pills easily, unlike some people I know that can't take pills at all.
The next thing I remember is them moving me to the next recovery room. I did manage to look at a clock and was shocked to see it was around four. I was in a fair amount of pain, like really bad cramps. They were asking me how bad the pain was, on a scale of one to ten, ten being the worst pain I ever felt. Well, I've felt some really bad pain in my life. I've had two children without any drugs, so I know pain! But telling them that this pain compared to that was merely a three wasn't going to get me any more pain meds. I'm learning that the hard way. Thankfully they took pity on me when they couldn't take watching me lie there grimacing and writhing anymore. They shot me up with something, and then I was better.
But I was so sleepy. My mom came into the room,we talked for a bit, then I went to sleep on her. So she just played solitaire on my ipad When I woke up, I felt a bit nauseous, so even though the nurse was hoping to get rid of me, she shot me up with gravol, which meant that I had to stay another half hour. I was ok with that. I promptly passed out again.
The next time I woke, I realized the whole place was pretty much vacant. But I still felt sick. Mom helped me dress, then got my drunken self into a wheelchair and wheeled me out. That was the worst ride I've ever had. By the time mom got to the doors, I was opening the barf bag and holding it up to my face. When she went to get the car, I asked her to leave me outside, despite the negative temperatures. Actually, that's the only thing that helped; the cold, cold fresh air.
When I got home, I went to the bathroom and looked at myself in the mirror. I was shocked by how grey I looked. Horrible.
I basically slept on and off since two o'clock that day until seven the next morning. That's a lot of sleep, even if some of it was drug-induced!
Since then, I've been ok. The incisions aren't too sore, it's more the air that's stuck inside of me that's killing me. They pump air into you so they can see what they're doing, but don't remove it. So it's stuck in my abdominal cavity, bubbling around and driving me crazy. It's painful, as gas can be. Only I can't burp or fart it out (forgive the crudeness!), I can just hope for it to somehow dissipate.
The weird part of this experience is that the doc never came to talk to me afterwards. I had to call his office the next day to find out what happened. I also had to make a follow up appt for six weeks away.
So as it turned out, I never actually had a dermoid cyst. What I do have, is stage four endometriosis, which is severe, and a lot of scarring on my uterus and ovary. Apparently, my ovary is stuck to my bowel, so he couldn't remove it without fear of putting a hole in my bowel.
So basically, he said my option is to have a hysterectomy. Which I guess doesn't really make it an option. Unless I choose to not have one, but then what? I'll continue to have these painful episodes. And likely they'll get worse. But even a hysterectomy doesn't guarantee the endometriosis will go away.
So that's my story. I don't know what to do,but I'm guessing the next time the endo flares up, I'll be making a solid vow then to end the pain by any means possible.
Labels:
endometriosis,
hospitals,
laparoscopy,
ovarian cysts,
sickness,
Surgery
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